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Migraine Blue - The Goal Is To Be Free of Migraine

 
Migraineblue is my life now.My goal is to be migraine free.To be be able to be outside and look up at the sky the way I used to,with joy,not fear. To be free to live.
I have a website,I've talked about it here on this blog.It is http://www.mymigraines.com/ I have a forum as well as alot of information about migraine.There are videos,I have another blog there.I will always keep this blog going and my information comes from mymigraines.com website.
I am looking for people to become members,it is free.I also am looking for other migaineurs stories.Your experience with migraine.Er trips,doctor visits,meds that have worked for you.Maybe alternative methods that have helped.
This is your chance to speak,to share and to get a forum going where migraineurs can help each other,support each other.I've got alot of readers on this blog.I would really appreciate your membership.It would be great to have you on my site helping me to get migraine respected as a disease.My website is updated daily with news.
Like I said,I will always keep this blog.Thanks so much.
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Solving migraine mysteries: New treatments may help
by Andy Dworkin, The Oregonian
Tuesday July 08, 2008
source:mymigraines.com

A medical group has started a "Headache on the Hill" lobbying effort to increase federal research money. A promising new kind of migraine drug is in late-stage tests.

Most dramatically, scientists have overturned the theory that migraines were "vascular headaches," caused mostly by the expansion and contraction of certain blood vessels.

"The pain comes from the brain, and not the vasculature," said Dr. David Dodick, a headache expert with the Mayo Clinic in Arizona.

What starts a migraine deep in the brain always has been a mystery. But most migraine sufferers -- officially called migraineurs -- have triggers that set the pain in motion. Stress, lack of sleep, hormones and alcohol are common causes, but triggers are highly individual.

Everything from blue cheese to bright lights can cause migraines in certain people. Scott is so sensitive to raw onions that just the smell can touch off a headache.

"Basically, those of us with migraines, our knobs are cranked on 'high' in our brains. We're more sensitive," said Peterson, who founded the Oregon Headache Clinic in Milwaukie and an awareness group called HEADquarters Migraine Management.

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I love this article.You're welcome to read the whole thing at my website mymigraines.com I update the news on there daily.And there are forums set up with more information and ready for discussion.
This article provides information that you may want to share to educate yourself,other migraineurs,maybe even some people in the medical world that need to be educated on migraine.
" $12 billion are spent on the direct costs of migraine and another $12.5 billion on indirect costs"
Wow,that should raise some eyebrows.It makes you wonder even more why migraine is looked at as so trivial,so easy to manage.
This kind of article,getting the information out there gives me hope.I think alot of people suffer in silence.It may seem easier to do so,rather than being labled as a hypochondriac,having a mental issue or being over emotional.
Information is the key to getting migraine respected as a real disease.I avoid the er alot of times when I really should go for help.But facing the "mistreatment" in the er is almost as bad as the pain,vomiting sometimes fainting,convulsing.I take chances at home rather than being made to wait so long(in hopes that I'll give up and leave) and then after the wait,not listening to me.Even bringing a letter from my doctor did not improve the treatment.In fact,they wouldn't even look at it.They told me they didn't care and thought I was trying to get special treatment.
An article like this may just reach the people treating migraine.
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Zap it to me now,Why Wait?

June 28th 2008 01:55




Magnetic Device Could Zap Migraines

NEW YORK, June 27, 2008
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(CBS) A strange-looking device may be able to stop a migraine in its tracks. That could be good news for the estimated 30 million Americans who suffer from the condition.

It’s called Transcranial Magnetic Stimulation - or TMS. The patient puts a device on the back of the head, and pushes a button, sending a magnetic pulse into the skull, CBS News medical correspondent Dr. Jon LaPook reports.

"It actually generates a very small amount of current that flows through the brain and the assumption is that current is what turns off the migraine attack," said Dr. Richard Lipton of the Albert Einstein College of Medicine.

About 25 percent of migraine headaches are preceded by what's called an aura, including visual changes like flashing lights, zigzag patterns and blind spots. The idea is to use the device at the first sign of an aura.

"People can treat a headache when they feel it coming on," Lipton said.

In results released today by Lipton, a shareholder in the company that makes a device, TMS treatment stopped migraines in 40 percent of patients - twice as effective as placebo.

"There are a lot of patients who can't take the prescription drugs that are available for migraine, and this gives me a whole new avenue of therapy,” Lipton said.

There are medications currently available that have been extremely effective at stopping migraines, but they do have side effects. So if the FDA approves this device, it could be a welcome alternative.

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Ok,so the study is done.If this device can help,why,why,why, make people wait...let me think.Oh,I know,I got it...competition for prescription meds.
And who wants an alternative without side effects.After all,taking certain meds can cause side effects and that could mean more meds to help those side effects and on and on.
Not to mention,well this med didn't work,so we'll switch you.Or oh my,a new med out that is really better than what you're taking now,or what you've been taking stops working,so let's switch.
We're a civilized country here in the USA.So why would we make people suffer?It's all in the name of money.
I don't know about you,but I'm tired of the pain.I have chronic migraine now,but my level goes up so high at times,I feel like this is the big one...When it wasn't chronic,I remember the fear I had of the next migraine attack.
Look,they know people miss work,it's costing companies money.But the big companies that make our meds the power.I remember there were all sorts of songs when I was growing up,Power to the People.Right.
Civilized,no I don't think so.


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It's enough to make me scream

June 18th 2008 21:15
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About Last Night

June 6th 2008 00:30


So,what better week to have a migraine meltdown than National Headache Awareness Week.And last night was BAD


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Summer,bbq's.picnics,sitting on a swing feeling a summer breeze.Blue sky,green grass,family get togethers.Going to the park,walking down the path around a local lake.
Those are my dreams....very little of that will be reality for me


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Choronic Pain,mistakes,pifalls

May 28th 2008 21:52
the Greek philosopher Aristotle is reported to have said
Hope on the Horizon
The Greek philosopher Aristotle is reported to have said "Pain upsets and destroys the persons who feels it." However, there are some very important factors that you have to think about relative to learning how to cope and manage your chronic pain.
People living with chronic pain life is tough and it is exhausting.Some of the information I found in this list,I do myself.It is a guide for people with chronic pain.Something I need...until I became ill,I followed in my mother's footsteps.She was like the energizer bunny,going and going.Everything had to be done,nothing left undone.The house just so,laundry done,go,go,go.I did it for years.Raising three daughters,employed outside the home,helping my husband with business venutures.Superwoman


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New York State Gov. David Paterson checked himself into hospital on Tuesday with symptoms of a migraine headache and preliminary test results were normal, the governor’s office said


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Some migraine meds deadly???

May 18th 2008 04:13
I update daily newsfeeds on my website http://mymigraines.com and always take the time to read them.I was surprised to find an article re: Triptans.These are meds used as migaine abortives,such as Zomig,Imitrex,Relpax.
It has been known for some time triptans taken with certain serotonin inhibators like Paxal and Zoloft could cause Serotonin Syndrome,a rare but potentially fatal drug interaction.In the May 15 issue of the New England Journal of Medicine is the first information triptans on their own have been linked to the disorder.There are 11 cases of Serotonin Syndrome that were reported to the FDA,with the use of triptans alone.These are detailed by the FDA and researchers from Georgetown University in the New England Journal of Medicine.

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