So,here I am....I was in and out of bed all day.I know this past 2weeks have been rough.I thought it might catch up with me.I know there'll be people out there that will understand when I say the worst pain today is the roots of my hair hurt.I've gone through this before,sometimes so bad,I almost shave my head.
For people who can't relate,think of a toothache,earache,the throbbing pain.That's the pain,only it's the roots of your hair.Mine today has been right at the front of my head.It's the one pain that does me in.
I've had such a hard time focusing.I slept through part of it.But I don't want to deal with this,especially now.I need to grieve.I need to go through memories,photos,reflect,accep t.
Migraine hits and that's all there is.It dominates everything.I have migraine all the time,but when the pain level rises like this,I'm done.
That is why when I see articles like the one I talked about previously,it makes me crazy.What is the deal?If there's something out there that can give me even temporary relief,especially not another med,why make a migraineur wait?
Life is short.I want to be able to make the most of it.I feel I have been working hard at it so this doesn't take everything away from me.
New Device Offering Relief For Migraine Sufferers
(KDKA) A new device is offering some hope for migraine sufferers, promising to stop pain before it even starts.
Statistics show that nearly 30 millions Americans get migraines.
Researchers say a study on an experimental device, which sends short bursts of magnetic energy to the brain, is now being conducted.
"We're hopeful that it'll provide a completely new modality of treatment for migraine sufferers," said researcher Dr. William Young.
Researchers say they are testing the device in patients who have migraine with aura, a visual warning sign of the pain to come.
Doctors say those auras can last 20 minutes to an hour, and that gives patients time to aim the device at the trouble spot shown on MRIs to be in the back of the head.
If magnetic stimulation can interrupt the aura, experts say there's a good bet it will stop the pain.
"You have this warning sign," said Dr. Young. "You know you're gonna get a headache and then you treat yourself before you even get the headache so it never happens."
Doctors add though, the device does not relieve the migraine once the pain has already started.
Researchers say if studies prove the device is successful, the treatment may be available within a few years.
For more information visit: Neuralieve.com
source:cbs broadcasting mymigraines.com
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This seems like a device that would help so many if it really works the way it is designed.So,my question is, if that turns out to be the case,why would it take a few years to be available.
I can't even imagine making so many people wait that could be given relief.It is not a new medicine.Even if you had to go through your doctor to get it, if this device works,get it out there.Make it so you have to go through a doctor just as other items.When I had carpul tunnel,I took my prescription and was able to get a proper device.Why not set this up the same way.
So,once again,they give hope and take it away.A few years away....for some people that's feels like a lifetime
This is for people who know,love,care for,work with those who suffer from chronic pain.Please,understand that the pain is real.Right now I will focus on migraineurs,because that is what I am,and that is what I am more than familiar with.
As a migraineur for a long time,I can say that I'm not the person I was.I miss who I was,I don't want to be who I've become.
I've written about losing my dad recently.I am not able to mourn the way I should and need to be able.I made it through the time for my dad and his service.Now,the migraine pain has caught up to me.
The level of pain has gone up.So it's what I have to deal with.I'd love to be able to have a good cry,but I can't because it'll most likely make my pain level even worse.I can't focus on memories,looking at photos.
So,these things I have to set aside.But I know it can't be healthy.Maybe,I'm a ticking time bomb.
I need understanding,that I have this pain.It makes me snap at people when I don't mean it.It makes me tired so I can't do the things I want and need to do.My humor is not what it was.
I am not lazy.I look at my home and am bothered by the things I need to do.I don't hear from people that I would expect to,they don't call and they don't answer my calls.Even when I try to just be upbeat.I don't complain.But it doesn't matter.
I have a disease.You can't see it,unless you see me and look close into my eyes.And if one of the people I thought would be there would see me in a fetal position in pain,or dry heaving,fainting,not able to talk,staggering if I am able to get up.
Crying in my sleep,waking up in so much pain I can't beleive it.I write if I am able.I remember writing something on a er med blog and had spelling errors.That is part of the migraine.But,these medical "professionals" had a good time laughing and making fun of me.If they are so knowledgeable,why would they not know that.
So,if you know someone who is a migraineur or in chronic pain,understand they don't choose to be who they are with this pain.The pain runs their life.Migraine is not just a headache.Migraine is complicated.There is no one pill,no one remedy,no one size fits all.We are lost.And we are met with disrespect.
Be there for them.Support them in whatever way you can.Beleive that they are ill,they are ill.They need all the support they can get.Don't avoid their calls.Even a quick visit,maybe bring a candle,or just a kind word.You have no idea what a difference you could make in their life.
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