I am trying hard to take little steps as summer gets closer.I am making an effort to get out more.It is not easy.Today we were in an area that I wasn't familiar with and there was a roundabout...my husband was driving.He was going slow.But even so,just going around that,I actually felt this sharp pain,heard it in my head.It was almost like a snap sound.
I'm gong to call the clinic tomorrow and talk to a nurse.I may be able to get them to talk to the neuro they sent me to consult with.I still have more pain there than I usually do.And it really scared me.
I just know I need to call anytime something is different with my pain.Of all the migraine attacks and with this chronic migraine for over 3yrs now,I've had alot of things happen,but not like this.
So if you have migraine,migraine attacks,you should contact your doctor anytime you have something "different" happen.Migraine can lead to stroke.I was suppose to have a cat scan anyway because the neuro thought my new symptom "facial pain" was sinus...whatever...I haven't had that done yet.Maybe if they consult w/him they'll add to it.I am not one that presses the panic button.
But with this event and the difference I feel in that area,I have to let the doctor know.My genetics are not the greatest in my family.My brother,who is only 3 yrs older than me,had a stroke last year.The doctors said the only thing they could come up with was genetics.
My oldest brother has 100% blockage in one side of his neck.So,it's just better to keep the doctor clued in to what's going on.I learned that when I went to the dermatologist.I had a mole on one of my toes.I wasn't going to show him and decided to at the last minute.(my brother has melanoma) I felt stupid when I showed him.Well,I ended up having to have it removed,2 procedures.
It's better to feel stupid and say something than to take a risk at something going wrong.
I had an important event to go to yesterday.It was my oldest grandson's 11th birthday party.I haven't been able to make it to a grandchild's birthday party in 2 years.Well, I made it.
At times I had to go to a more quiet room because of the noise,my pain level went up.But it was important for me to get there and I did.
I think of all the years my parents came to my kids' birthday parties and school events.My mom had alot of chronic physical ailments throughout her life.I know she had chronic pain.I have more respect for her now than I ever did.
For those with chronic pain or a disability that keeps you from being able to do things that are important to you and aren't always able to,please you are not alone.And it is not your fault.I know that with my situation, many times,my guilt is as strong as my pain.
For those who are related,friends,coworkers of people with chronic pain,please try to understand.There is never a time they don't need your support.We don't have control over our bodies.We can't make plans for certain ahead of time.Speaking for myself,I literally have to go by the hour,or less.I may be able to handle a situation and then when the pain is on the rise,I have to leave.
I have gotten dressed to go some place and by that time,I just can't go.It's not that I don't want to,I cannot.The pain makes the rules.
I mourn for the person I was.I know now that I actually liked myself.I miss my sense of humor.I miss being able to be silly with my grandkids,my kids.People with chronic pain have lost thier identity.One thing they don't need to lose, is family and friends.
I have a sister with ms and parkinsons' who lives alone,but she is not alone.She is surrounded by wonderful friends.They take her to doctor appointments,bring her dinner.They go to lunch with her or if one is having a bbq and she can't drive,someone will pick her up.
They accept that some days she is not herself at all.She is a very strong person.I admire that in her.We talk on the phone,we may have a meltdown and the other one understands.She has friends that will come over if she needs.And if she tells them no,she needs to be by herself,they accept that.They don't judge her.They don't abandon her.They are there for her.And I am grateful.
I feel bad sometimes for not being able to be there in the way her friends are,but her friends are,so I know she's ok.
It comes down to being supportive,caring,not judging.So,if you are related to,friends with or know someone with a chronic illness,take a little time to show you care.It can really be true, out of sight,out of mind.
For those who in need of support,reach out.There are support groups.Don't let yourself be alone.
If you can't get out to a support group,see if someone will come to your home.Find an online friendly forum that you feel comfortable with.Remember,you are as important as anyone else.Take care of youself.You're going trhough enough without being alonge
I picked up the equipment to use for my sleep tonight/test for sleep apnea.I take the equip back tomorrow.
I'm not sure when I'll get the results.I've been very foggy in my head.Hard to focus.Head hurts alot.Extremely groggy,fatigue.So,we'll see. If it doesn't show anything....I'm going to have to try something.You get to this point and it's beyond coping.Wish me luck
Some hope on the horizon.I found an article on my website mymigraines.com re:a new migraine medication that is under review by the FDA.Approval could come as early as April 15th,although,no reason given, FDA may postpone that time.
The name of the new medication is Treximet,formerly called Trexima.Now,here comes the part that I'll have to look into a little more,I'm confused.This med is a combination of drugs already on the market, Lmitrex and Naproxen,sold over the counter as aleve.
Anyway,I'll keep an eye on it.If there's a possiblity of it working,let's hope FDA doesn't hold it up....I'm interested to learn more.
Add Comments
Read More
Comments (1)