Be Supportive of Migraineurs
March 29th 2008 20:20
This is for people who know,love,care for,work with those who suffer from chronic pain.Please,understand that the pain is real.Right now I will focus on migraineurs,because that is what I am,and that is what I am more than familiar with.
As a migraineur for a long time,I can say that I'm not the person I was.I miss who I was,I don't want to be who I've become.
I've written about losing my dad recently.I am not able to mourn the way I should and need to be able.I made it through the time for my dad and his service.Now,the migraine pain has caught up to me.
The level of pain has gone up.So it's what I have to deal with.I'd love to be able to have a good cry,but I can't because it'll most likely make my pain level even worse.I can't focus on memories,looking at photos.
So,these things I have to set aside.But I know it can't be healthy.Maybe,I'm a ticking time bomb.
I need understanding,that I have this pain.It makes me snap at people when I don't mean it.It makes me tired so I can't do the things I want and need to do.My humor is not what it was.
I am not lazy.I look at my home and am bothered by the things I need to do.I don't hear from people that I would expect to,they don't call and they don't answer my calls.Even when I try to just be upbeat.I don't complain.But it doesn't matter.
I have a disease.You can't see it,unless you see me and look close into my eyes.And if one of the people I thought would be there would see me in a fetal position in pain,or dry heaving,fainting,not able to talk,staggering if I am able to get up.
Crying in my sleep,waking up in so much pain I can't beleive it.I write if I am able.I remember writing something on a er med blog and had spelling errors.That is part of the migraine.But,these medical "professionals" had a good time laughing and making fun of me.If they are so knowledgeable,why would they not know that.
So,if you know someone who is a migraineur or in chronic pain,understand they don't choose to be who they are with this pain.The pain runs their life.Migraine is not just a headache.Migraine is complicated.There is no one pill,no one remedy,no one size fits all.We are lost.And we are met with disrespect.
Be there for them.Support them in whatever way you can.Beleive that they are ill,they are ill.They need all the support they can get.Don't avoid their calls.Even a quick visit,maybe bring a candle,or just a kind word.You have no idea what a difference you could make in their life.
As a migraineur for a long time,I can say that I'm not the person I was.I miss who I was,I don't want to be who I've become.
I've written about losing my dad recently.I am not able to mourn the way I should and need to be able.I made it through the time for my dad and his service.Now,the migraine pain has caught up to me.
The level of pain has gone up.So it's what I have to deal with.I'd love to be able to have a good cry,but I can't because it'll most likely make my pain level even worse.I can't focus on memories,looking at photos.
So,these things I have to set aside.But I know it can't be healthy.Maybe,I'm a ticking time bomb.
I need understanding,that I have this pain.It makes me snap at people when I don't mean it.It makes me tired so I can't do the things I want and need to do.My humor is not what it was.
I am not lazy.I look at my home and am bothered by the things I need to do.I don't hear from people that I would expect to,they don't call and they don't answer my calls.Even when I try to just be upbeat.I don't complain.But it doesn't matter.
I have a disease.You can't see it,unless you see me and look close into my eyes.And if one of the people I thought would be there would see me in a fetal position in pain,or dry heaving,fainting,not able to talk,staggering if I am able to get up.
Crying in my sleep,waking up in so much pain I can't beleive it.I write if I am able.I remember writing something on a er med blog and had spelling errors.That is part of the migraine.But,these medical "professionals" had a good time laughing and making fun of me.If they are so knowledgeable,why would they not know that.
So,if you know someone who is a migraineur or in chronic pain,understand they don't choose to be who they are with this pain.The pain runs their life.Migraine is not just a headache.Migraine is complicated.There is no one pill,no one remedy,no one size fits all.We are lost.And we are met with disrespect.
Be there for them.Support them in whatever way you can.Beleive that they are ill,they are ill.They need all the support they can get.Don't avoid their calls.Even a quick visit,maybe bring a candle,or just a kind word.You have no idea what a difference you could make in their life.
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