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Migraine Blue - The Goal Is To Be Free of Migraine

 
Migraineblue is my life now.My goal is to be migraine free.To be be able to be outside and look up at the sky the way I used to,with joy,not fear. To be free to live.

How many must Die to Get Respect for Migraine Disease?

October 21st 2009 20:17
I was looking up news stories about migraine disease and found a story about a woman who was 7 months pregnant who died....was told she had a pinched nerve after going for medical help...even though her mother died of an aneurysm.
Doesn't matter where it was, Canada, the U.S. has the same sad attitude. I'm thinking it's because most migraine sufferers are women and of course women like to "be dramatic" , want attention, aren't tough like men.
This story makes me sick, it worries me as my youngest daughter is pregnant and gets really bad headaches. I will speak to her and her boyfriend about this and most likely her dr. I want them to take it seriously when she goes to the er. She has been once already, in severe pain and recently had problems breathing along with the pain.
It is long past time for Migraine Disease to be treated seriously. What, ya think someone who has never been a drug seeker, is taking good care of herself is pregnant is what, a drug seeker.
Get a grip!! Wake the medical community up!!
Pregnant woman dies/Migraine w/aura/Why
Told she had a pinched nerve!!


Really Long Link family wants answers after pregnant woman dies/2121512/story.html

Calgary family wants answers after pregnant woman dies

Mom-to-be sent home from hospital

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Comment by Kleonaptra

October 22nd 2009 00:13
I admire your goal.

I have chronic migraine, but they often change my diagnosis. I had a fall off a horse when I was 10, and since then Ive had migraine. Im now 27, and earlier this year I was in agony all day every day. They said sinus problems, they said teeth, then they said trigeminal nueralgia. A nuero - my sixth - said it wasnt nueralgia, just 'simply' a form of chronic migraine that has progressed to the point where the cycle is stuck. So I always have one. Instead of going between no pain and pain, I go between less pain and more pain.

I really think we should be able to do better than that.

Comment by Anonymous

October 24th 2009 03:42
Thank You for your comment. I am sorry for your pain.
I will not stop, I will never stop my goal of getting respect for migraineurs.
Now, I see my daughters going through it, my youngest now pregnant getting the extreme headaches and not being taken seriously.
She has seen me in er's for many years and how I was "mistreated"
I don't want my daughters to go through this. I want a better life for them. You're young, I hope the same for you.

Comment by Anonymous

November 1st 2009 07:19
I could not agree more with your assessment of the medical community's attitude toward people in pain, especially those with headaches. I've had brief, intense headaches off and on for several years now, but for the past four months, I've been completely incapacitated with the most horrific pain I've ever experienced. I'm a reserved person, but I scream and cry with these things. It's pure hell, as I'm sure you know. I was working, in grad school, active in church--all that has come to a grinding halt. I sit in my room day after day, trying not to aggravate my condition. I've been shuttled from doctor to doctor. All have given different diagnoses, all have prescribed medicine of some sort. But as soon as I report back that the problem is still here, they want to dump me on someone else. I've been to the emergency room, where I was basically treated like I was crazy, put on sedatives, etc. I've had "healthcare professionals" prescribe medications that react dangerously with one another, and I've had supposedly "caring" doctors and PA's get in my face and demand that I do physical therapy, even though I've explained over and over that physical activity makes it WORSE. I've written a summary of my condition, charted its progressions, charted my medicines, and even created diagrams that illustrate the locations and types of pain I experience. They. Don't. Care. It's not just my mouth screaming, it's my soul, because no one seems to take this seriously. I'm sick of getting the run-around from lazy receptionists. I'm sick of getting the stink eye from angry, burned-out nurses. And I'm especially sick of being dismissed by doctors who are either too cynical or too busy to actually dig into my problems and figure out what is going on with me!!!!!

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