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Migraine Information/Misinformation

May 11th 2010 19:46
migraine misinformation
Even Professionals can get it wrong


I search online everyday for migraine information. I want to know if there's anything new to pass along. I like to check and see how information is being presented.

Today I am giving an example of a place I found some good information and some misinformation.
It is in a Manual Nurse and Health Information ( in Free Pdf Format)
There is one sentence that stands out, not only wrong,but can affect how both the medical pros and the patient act/react to migraine.
"Migraines, however, are treatable and preventable." NO,NO,NO. Wrong!! Migraine is a very complicated disease. It is a neurological disease. There can be preventative measures for some. There are some migraines that are treatable. But not all...and a migraineur may find that triggers can change. What may have been a trigger before,is no longer.And what may have never been a trigger,suddenly is one.
They may find a medicine that they could take at home(abortive) worked, then stopped. They may find a treatment at the ER worked and no longer does.
For migraineurs like myself,it has been a progressive disease. I had a span of over 4 years being home bound,not even being able to look out the window at the sunlight. Then for a short time,my pain level went down to where I felt almost normal. I hadn't driven in over a year. I wasn't able to attend family functions,go into a store.Then I was able to...it was so great.

Now, I'm living in fear that I'm regressing. My pain level's rising. It is draining me. I am keeping my hopes up.
In the past,I lived with fear of the next migraine attack. Some so severe I would go into convulsions.I had to learn to keep(still do) Dramamine on hand.I cannot start vomiting,the pain is so bad,I thought my head would explode,and once I started,I couldn't stop.
So,no,not all migraines are treatable and not all are preventable.


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