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Migraine Blue - The Goal Is To Be Free of Migraine

 
Migraineblue is my life now.My goal is to be migraine free.To be be able to be outside and look up at the sky the way I used to,with joy,not fear. To be free to live.

Prepare for the doctor

February 29th 2008 03:15
Getting Ready to see the Neuro February 29th 2008 02:37
Have an appt in a few days to see the neuro.I saw him a long time ago,it wasn't helpful at all.But,I have heard that he has since helped people with similar chronic conditions,so we'll see.
I don't like going.I want to get my point across about how devasted my life is because of chronic daily migraine.You don't want to come across to desperate,but you are,so it's hard to explain and contain your emotions at the same time.
I really want him to KNOW that migraine has taken everything from me.Including my identity.I don't really remeber how it feels to be me.Who I was before migraine.The sense of humor I had.
A simple thing like being able to enjoy a breeze against your face.Now,instead brings more pain.How a beautiful blue sky was once a time to go outside and enjoy.Now,it's sunglasses,a ballcap,don't look straight up,watch for reflections that can be a trigger.
The simple things that brought joy.You can be sitting watching tv and commercials are sometimes filmed flashy to get your attention.I have to quickly look away.Certain types of filming,lighting in the commercial can be a trigger.
And then to explain the pain.How? He's not going to believe you're in that much pain at that high of a level all the time.Having your spouse wake you up because you're crying in your sleep.When you wake up,you can't believe the level of pain you're in and think you'll die right then.
He'll think you'r being dramatic.All I can do is keep myself together and tell him.Tell him what it's like day and night.Let him take it from there.If it goes nowhere,well,I'm already there.I just have to take the chance he'll believe me.I'll just have to take the chance and believe in him.

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